Creating a survey was one of the main driving forces behind making this website. When I was diagnosed with fibroids and was researching my options online I read a lot about hysterectomies. It’s a very emotive subject, and it’s hard to stay objective, but I did find myself wondering, where does this information come from?
Forums and groups are great sources of first hand information, but they aren’t an even sampling of the population. Generally speaking, if someone has a medical treatment and everything goes fine, they will move on with their life. Why would they hang out in a forum or group? But if they have a problem, well they’re going to be there, talking about it and asking for advice.
Blog posts are even more one-sided; they are the experience of one person. There are 600,000 hysterectomies performed in the USA in one year… how can you know if your experience will be like that one blogger? (I include my experience in this – I can tell you what happened to me but how do I know if that is what will happen to you!)
And lastly, there is a certain website out there (which I refuse to name here because I don’t want to give them any more traffic) that has a survey, and which shares those survey results. They present a very particular picture of hysterectomy – a negative one. And that’s because their survey is not well-designed (yes, I signed up and got them to send me the survey so I could take a look). With my post-grad experience it’s obvious to me the survey won’t gather useful information; instead it gathers information to present a particular point of view.
I have a scientific background and I want to run an objective survey, collecting as much unbiased information as possible from women who have had a hysterectomy, and share this with those thinking about having one. It’s the most objective way to get information!